Voices from the Past: Lisa (sagrae), Undiagnosed Bio
Im a mother of 4 use to work full time till I got to sick and very tired. Not sure what I have been to alot of drs. My tish flucuates my t4 is always in low range of normal, my cortisol tends to be...
View ArticleVoices from the Past: Rebecca D (RebeccaD), Pituitary Bio
Hi all! I am a 24 year old little miss you was diagnosed with Cushing’s Disease in Spring 2010. I did a ton of tests, including pretosal sinus sampling and MRI’s, and although images and direct...
View ArticleVoices From the Past: Alex C (Alex C), Undiagnosed Bio
Hi, My name is alex and i honestly have no idea what’s wrong with me. about 5 years ago i became ill, all of a sudden went from a healthy strong active person, to feeling weak, tired, i gained weight,...
View ArticleVoices from the Past: Julie, Undiagnosed BIo
First test came back high coritsol. Testing again in six weeks. Weight gain, edema, high blood pressure and other symptoms. Any advice would be helpful. Trying not to stress it but want to get this...
View ArticleVoices from the Past: Emily B-C (EmilyBC), Undiagnosed Bio
Hi. I am a 40 year old female who has been feeling “not quite right” for almost 10 years. I have been tested on and off for many different things and have been diagnosed with Epstein Barr, Adrenal...
View ArticleRobyn N (Robyn), Adrenal Bio
A Golden Oldie ~~~ Hi! My name is Robyn and I am a 48 year old wife, mother, daughter, sister, aunt, 1st grade teacher and a recovering Cushing’s patient. My story is so very similiar to the others on...
View ArticleIn Memory: Kalyn Allen, June 28, 2017
We lost another Cushie sister today. Kalyn Allen’s husband posted this on Facebook: This afternoon my beautiful wife and mother of my children completed her path in this life so that she may be reborn...
View ArticleHannah, Pituitary Bio
A woman who piled on 10 stone due to a rare condition has shed the weight in just two years, thanks to a daily exercise routine. Hannah Mai, 37, was diagnosed with Cushing’s disease, a hormonal...
View ArticleKristine (Kristine), Adrenal Bio
18 months ago I underwent an adrenalectomy (L) for a benign mass. My cortisol levels were slightly elevated, all tests suggested sub clinical cushings. Before the surgery I felt great, no symptoms...
View ArticleLiberty, Undiagnosed Bio
Liberty is not yet diagnosed, but possibly has a co-secreting tumor that is secreting prolactin and cortisol. She was told she might have a small tumor on her pituitary gland. Her bio was last updated...
View ArticleKirsty (kirstymnz), Ectopic Adrenal Bio
Another Golden Oldie, Kirsty’s bio was last updated 08/18/2009. ~~~ I don’t really remember when it first started. It was probably about a year ago when I think about it. I found myself becoming easily...
View ArticleFabiana, Pituitary Bio
Fabiana had transphenoidal surgery (pituitary) July 30th 2004. She had a recurrence after seven years of being Cushing’s free. A second pituitary surgery on 10/26/2011 was unsuccessful. Another...
View ArticleMagdalena, Food-Dependent Cushing’s Bio
Magdalena is from Windsor, Ontario (Originally Poland). She has Food-Dependent / GIP-Dependent Cushing’s Syndrome. This means that genetically, she has cells on her adrenals that are only supposed to...
View ArticleJackie (samsmom), Adrenal Bio
Jackie (samsmom) first started dealing with Cushing’s in her family when her youngest child was born in 1999. Jackie has appeared on the Discovery Health tv show pilot, Mystery Diagnosis, discussing...
View ArticleNikki C, Steroid-Induced Bio
For Dunedin woman Nikki Cockburn, being one in a million is not a compliment. She is one of the very few New Zealanders with Cushing’s syndrome, a very rare disease caused by excess production of...
View ArticleJoseph (joeysauce), Pituitary Bio
Hello everyone. My name is Joe. I’m a 23, soon to be 24 year old male who is (hopefully) in remission from ACTH-dependent Cushing’s disease and two transsphenoidal surgeries. I’d like to say my journey...
View ArticleJean (Jinxie) Cushing’s and Acromegaly Bio
This bio was originally posted 1/26/2008 ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ My Cushing’s and Acromegaly Odyssey During the summer of 1999 I was a trim and fit 130 pound woman. I was very athletic and...
View ArticleShe thought her weight gain was due to giving birth. She learned it was a tumor
Dr. Irmanie Hemphill, who first thought her weight gain was due to having a baby. Doctors at Cleveland Clinic Florida in Weston diagnosed her with a tumor in the pituitary gland in her brain. In the...
View ArticleYana, Pituitary Bio
It took Yana Zavros 16 years to get diagnosed with a disorder called Cushing’s disease. Sixteen years of a demoralizing condition that causes muscle weakness, mood changes, and weight gain, among other...
View ArticleVideo: People Don’t Understand Cushing’s Disease
Cushing’s disease changed my body, my mind, and honestly my whole life. The swelling, cortisol, mood swings, pain, exhaustion… people don’t always understand how brutal it can be. This morning one of...
View Article